Janet Freeman-Daily
Janet Freeman-Daily has metastatic non-small cell lung cancer and relies on social media and clinical trials to stay up to date on treatments.
Read more »Charlie Blotner
As a college student studying family dynamics, Charlie Blotner hopes to change the future of participatory medicine for chronically ill adolescents and young adults.
Read more »Devon Low
Devon Low is a COPD patient advocate and patient advisory board member at UCSF.
Read more »Dana Lewis
Dana Lewis created and moderates the internationally-recognized #hcsm (health care communications and social media) conversation and community on Twitter.
Read more »Andrea Downing
Andrea Downing is a BRCActivist. When she was 25, Andrea discovered she has up to an 87% lifetime risk of having breast cancer and up to a 60% lifetime risk of ovarian cancer when she tested positive for a BRCA1 deleterious gene mutation.
Read more »Sarah Kucharski
Sarah Kucharski, or AfternoonNapper, blogs as a health advocate fostering the patient voice in medicine.
Read more »Emily Kramer-Golinkoff
Emily Kramer-Golinkoff is the co-founder of Emily’s Entourage, a nonprofit organization that raises funds and awareness to cure Cystic Fibrosis.
Read more »Liza Bernstein
Liza Bernstein is a three time cancer survivor who has used Twitter and social media to extend her patient advocacy work to help others become engaged patients and partner in their own care.
Read more »Julie Flygare
Julie created the first-ever narcolepsy advocacy mobile app, awareness video series and infographic to empower advocates with essential communication tools.
Read more »Joe Riffe
Joe Riffe is also known as the Prosthetic Medic. He literally fell into his role as an ePatient and amputee activist when he fell 110 ft off of a waterfall. Joe has been on the ePatient Honor Roll; spoken to the Kentucky House of Representatives; and is petitioning the President to push Prosthetic Insurance Fairness nationally.
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