Kirsten Schultz

At Not Standing Still’s Disease, Kirsten Schultz writes about her personal experiences with Still’s Disease and issues facing children and young adults affected by rheumatic and other chronic diseases.

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Danielle Edges

Danielle Edges is a mother to two daughters, Alexandra and Aria. Alexandra was born with a rare medical condition, Heterotaxy Syndrome, resulting in 5 heart surgeries and an abdominal surgery all before the age of 4.

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Sabine Schwab

Sabine Schwab is a 32-year old native German who moved to the USA in 2010. When diagnosed with a grade II-III astrocytoma – a brain tumor – she quickly had to master the American health care system to take charge of her care. She is an international ePatient, a young mom, and a blogger at sabineandmichael.blogspot.com.

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Julie Doskicz

Julie (Jewels) Doskicz RN is a health blogger, ePatient, and creator of shesugar.com. She serves JDRF as a mentor, advocate, volunteer, and member of the online diabetes support team.

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Leslie Rott

Leslie Rott was diagnosed with lupus and rheumatoid arthritis in 2008, at the age of 22.  She has a PhD in Sociology from the University of Michigan, and is currently working on a Master’d Degree in Health Advocacy at Sarah Lawrence College.  She writes about her illness experience in her blog Getting Closer To Myself.

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Liza Bernstein

Liza Bernstein is a three time cancer survivor who has used Twitter and social media to extend her patient advocacy work to help others become engaged patients and partner in their own care.

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Joe Riffe

Joe Riffe is also known as the Prosthetic Medic. He literally fell into his role as an ePatient and amputee activist when he fell 110 ft off of a waterfall. Joe has been on the ePatient Honor Roll; spoken to the Kentucky House of Representatives; and is petitioning the President to push Prosthetic Insurance Fairness nationally.

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