Carolyn Thomas
Carolyn Thomas is a Mayo Clinic-trained advocate, knowledge translator, speaker and heart attack survivor who writes on women, heart disease, and the patient experience.
Read more »Scott Strange
Scott Strange has been a Type 1 diabetic since 1970. Strangely Diabetic is his story of how diabetes has affected his life and how his life was changed when he learned that he wasn’t alone in this chronic condition.
Read more »Melissa Hicks
Melissa has undifferentiated connective tissue disease (UCTD) and chooses to use the power of social media to improve patient experiences.
Read more »Sarah Han
Sarah’s painful experience post-surgery made her realize that there are gaps in the healthcare system and patients have enough meaningful information to address them.
Read more »Meredith Gould
Dr. Gould decided to shift her focus away from being chronically ill to helping others communicate clearly with healthcare professionals and manage hospitalizations.
Read more »Tim Gort
Two of Tim’s three daughters experienced preventable medical errors at the same children’s hospital.
Read more »Erin Moore
Erin is a member of the Committee for Patient Engagement at the Cystic Fibrosis Foundation and works on the Committee for Patient & Clinician Engagement on the New York CDRN. She also leads the patient engagement work for the development of a Collaborative Chronic Care Network (C3N) for Cystic Fibrosis.
Read more »Carly Medosch
Carly Medosch has been living for over twenty years with Crohn’s disease and with fibromyalgia, and is passionate about breaking down silos between patient communities so we can share knowledge, support and increase our advocacy power.
Read more »Heather Gabel
Heather engages with the diabetes community and is eager to find ways to measure the impact of peer mentoring in youth with diabetes.
Read more »McKenzie Libbesmeier
McKenzie is an ambassador at the Arthritis National Research Foundation, and a blogger at Life According to Kenz.
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