Nikolai Kirienko
Nikolai Kirienko is the Project Director of Crohnology.MD, a Robert Wood Johnson Foundation funded pilot grant to design, build and evaluate a biometric device enabled mobile personal health record for Crohn’s disease.
Read more »Leslie Rott
Leslie Rott was diagnosed with lupus and rheumatoid arthritis in 2008, at the age of 22. She has a PhD in Sociology from the University of Michigan, and is currently working on a Master’d Degree in Health Advocacy at Sarah Lawrence College. She writes about her illness experience in her blog Getting Closer To Myself.
Read more »Liza Bernstein
Liza Bernstein is a three time cancer survivor who has used Twitter and social media to extend her patient advocacy work to help others become engaged patients and partner in their own care.
Read more »Julie Flygare
Julie created the first-ever narcolepsy advocacy mobile app, awareness video series and infographic to empower advocates with essential communication tools.
Read more »Laura Barre
Laura Barre scours the internet for information and uses social media to connect with others with “autoimmune soup” in the hopes of learning more about her disease.
Read more »Joe Riffe
Joe Riffe is also known as the Prosthetic Medic. He literally fell into his role as an ePatient and amputee activist when he fell 110 ft off of a waterfall. Joe has been on the ePatient Honor Roll; spoken to the Kentucky House of Representatives; and is petitioning the President to push Prosthetic Insurance Fairness nationally.
Read more »Heather Kern
Heather Kern is a Cardiovascular ePatient and a dedicated patient advocate.
Read more »Donna Cryer
As a blogger, a member of the Society for Participatory Medicine, chair of the board of the American Liver Foundation, and CEO of CryerHealth, Donna communicates virtually and in-person with thousands of patients, patient advocates, and providers in disease states she personally lives with.
Read more »Rachel Crooks
Rachel Crooks’ diagnosis of Myasthenia Gravis and subsequent journey renewed her interest in becoming a physician. She blogs about patient experience and improving communication between patients and their health care providers.
Read more »Sherry Reynolds
Sherry Reynolds is an eHealth Evangelist, focused on Human Centered Health Design, and a Social Venture Entrepreneur.
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