Melissa Hicks
Melissa has undifferentiated connective tissue disease (UCTD) and chooses to use the power of social media to improve patient experiences.
Read more »Alicia Staley
As a 20-year, three-time cancer survivor, Alicia Staley has worked very hard over the past few years to advance the patient experience in the field of oncology care.
Read more »Karen Herzog
Karen persevered in the search for a cure for her daughter, who at 4-years-old succumbed to Niemann-Pick Disease, a rare fatal genetic condition.
Read more »Sarah Han
Sarah’s painful experience post-surgery made her realize that there are gaps in the healthcare system and patients have enough meaningful information to address them.
Read more »Meredith Gould
Dr. Gould decided to shift her focus away from being chronically ill to helping others communicate clearly with healthcare professionals and manage hospitalizations.
Read more »Tim Gort
Two of Tim’s three daughters experienced preventable medical errors at the same children’s hospital.
Read more »Erin Moore
Erin is a member of the Committee for Patient Engagement at the Cystic Fibrosis Foundation and works on the Committee for Patient & Clinician Engagement on the New York CDRN. She also leads the patient engagement work for the development of a Collaborative Chronic Care Network (C3N) for Cystic Fibrosis.
Read more »Carly Medosch
Carly Medosch has been living for over twenty years with Crohn’s disease and with fibromyalgia, and is passionate about breaking down silos between patient communities so we can share knowledge, support and increase our advocacy power.
Read more »Cyrena Gawuga
Cyrena Gawuga had always planned to be a physician, but her spinal cord stroke in February 2014 turned her into an ePatient instead.
Read more »Annette McKinnon
Annette McKinnon is an advocate for patient inclusion in conferences, research and decision making in health care.
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